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✌🏼 years of Beckett


For a long time now I've been wanting to put a medical binder together of all his paperwork from specialists, testing results, anything that may come in handy for someone else to have but also a great resource for future reference. As I was online printing off all the documents I wanted to put into this file, I came across this list pictured above; his diagnosis list (and not even the most updated one). When you look at this list, and you compare it to who Beckett is today, he is far exceeding anything I could have predicted based on his extensive diagnoses. 

His first trip around the sun, I truly would have thought we would be lucky to get a decade together earth side. He had so many hardships, his EEGs were showing seizure activity, he wasn't progressing much in his physical development, and it was quite taxing on us. One year ago, he couldn't sit independently, and was just barely rolling over. It's interesting because on one hand I'm grateful for all these diagnoses. They have given him access to so many different resources from therapies, to the birth to 3 program, to his countless approvals for medical equipment. On the other hand, I hate that he even has these diagnoses. He will continue to have hardships for the rest of his life when it comes to feeding, communicating, and even movement.

From a devastating diagnosis, to a hopeful heart for the future, year 2 was so bright. While it has brought new challenges, it has also brought so much joy. Regan and I are so thankful for his continued health and development. In fact, when we sit down at the end of the year and share our top moments in the year, we both agreed that the best thing of 2023 was Beckett taking steps. I cannot believe my eyes when I see him walking into the kitchen from the living room. As unstable as he may be, he's taking independent steps and I know he's not stopping here.

He is a mischievous, determined, strong boy, with a sweet, cuddly, loving side he only brings out on his terms. His laugh is by far the greatest sound I have ever heard, and it just puts a smile on all our faces when we hear his belly laugh. Since he was born, I would venture to guess he's had around 500 different appointments over his two years, whether that be a specialist, or a form of therapy. And through it all, he's so happy. He's so happy to be here, and so happy to be taking in the world on his terms. 

Two years ago was not only the day we brought Beckett into this world, but also a day that a huge part of who I am today was born. I have been forever changed since his arrival but couldn't ever dream of another way to complete our family.




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