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EEG Results

We have received the results from the EEG.

They noticed a few things on his EEG.

He had the EEG completed when he was 45 weeks old (8 weeks old and born at 37 weeks), but his brain waves matched that of a 39 week old baby, so his brain waves are immature for his age. It is most likely that they are immature due to the structural abnormalities of his brain.

There were also sharp waves in the left temporal lobe which is where they found a cyst in his MRI at birth.

We will be repeating the EEG when he's around 6 months to see if he is maturing appropriately and to see if the sharp waves are still present.

She didn't notice evidence of seizures but due to the structure of his brain, he will always be at risk and that's just something we will have to monitor closely for any changes because he can get medications to help with those, but not until he officially has seizures.

Focal seizures are the types of seizures we would notice right now, which would consist of him jerking on one side of his body, or his eyes and head deviating to one side and not moving to the other when we try to get him to react to us.

The startle reflex is something he does A LOT, and I was very worried it was not the startle reflex but rather infantile spasms that he was experiencing but thankfully there was no evidence of that at this point. While it usually starts around 6 months, I have heard of cases of it earlier. Either way, I'm glad it's not happening at this point at least!

One thing I brought up on the phone call was his feeding. When I breastfeed him, he does great, no issues at all. Lately, when he takes his bottle in the evening so I can pump during our "witching hour", he chokes multiple times during the feeding and not only does it scare me, but I wondered if it had something to do with his brain structure because I know a future problem could be his ability to chew and swallow food properly. She suggested we start speech therapy. It would really be feeding therapy at this point since he's not verbal, but just to see if there's something happening in his mouth that is preventing him from swallowing correctly. 

When we had our initial meeting with this neurologist she brought up cerebral palsy, and in my research of it I do feel like he is showing that to be true so I asked for her opinion again. She said she remembers thinking it right off the bat from meeting him and feels confident in adding that to his medical file. I am still doing infant massage twice a day with him because the main concern she has with that is preventing contracture which is when their stiff limbs cannot be moved. By doing the infant massage and moving his limbs frequently, we can try to prevent any of them from being in that stuck position.

Overall, Regan and I both believe the whole thing to be good news for him and we will see what happens over the next couple months!




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